International Albinism Awareness Day

International Albinism Awareness Day History

International Albinism Awareness Day aims to raise awareness of albinism, a rare genetic condition that results in a lack of pigmentation in the skin, hair, and eyes. The day seeks to dispel misconceptions surrounding the condition and to promote acceptance. This observance is significant as individuals with albinism often face discrimination, stigmatization, and violent attacks in some regions of the world.

The United Nations General Assembly established International Albinism Awareness Day in 2014, recognizing that people with albinism face multiple forms of discrimination worldwide. This day offers an opportunity to learn about the challenges that people with albinism experience and to advocate for their human rights. In the United States, many are unfamiliar with albinism, often perpetuating misconceptions or spreading misinformation about the condition. Increasing knowledge about albinism is key to breaking down misconceptions and fostering a society that values all citizens.

International Albinism Awareness Day is observed with events and activities that educate and raise awareness about albinism. Events may include lectures, panel discussions, creative performances, and social media campaigns to ensure accurate representation. Organizations also support advocacy initiatives and work to improve the lives of people with albinism. International Albinism Awareness Day is observed every year on June 13th, providing an opportunity for communities to unite in support of individuals with albinism.

International Albinism Awareness Day facts

• It is estimated that about 1 in 17,000 people worldwide has some form of albinism.
• Albinism is often associated with various visual impairments, such as nystagmus (involuntary eye movements), strabismus (crossed or misaligned eyes), and photophobia (sensitivity to light).
• Albinism is caused by a genetic mutation that affects the production of melanin. Melanin is the pigment responsible for coloring the skin, hair, and eyes. It is typically inherited when both parents carry the gene mutation.
• There are two main types of albinism:
  1) Oculocutaneous Albinism (OCA) – most common, affects the skin, hair, and eyes.
  2) Ocular Albinism (OA) – Rare type that mainly affects the eyes.

In the News and Trending in the US for International Albinism Awareness Day

Top things to do in the US for this observance

• Register for the virtual choir hosted by National Organization for Albinism and Hypopigmentation.
• Explore a reading list that can help educate and spark conversation about albinism.
• Meet several champions of the albinism cause.